Colin Leypoldt a local high-school wrestler is defining his strength in a way that gives him purpose. Colin has been given a diagnosis of Fahr’s disease; also referred to as Fahr's Syndrome. A rare genetically dominant (>1/1,000,000), inherited neurological disorder characterized by abnormal deposits of calcium in areas of the brain that control movement. There is no known cure for Fahr’s and eventually the disease will result in death.
Colin’s diagnosis was made only a year ago, after battling up to as many as 70 seizures a day. Yet Colin has been Wrestling since the age of 6. He finished in fourth place during All-state champions last year; which qualified, the now freshman, for the state meet;which started yesterday Thursday February 19th, at the Pepsi Center. The doctors say this disease is extremely rare; and only a handful of people I the world have been confirmed having this condition.
Colin often requires a nap to get through an entire day of school; while the symptoms of Fahr’s are battling with Colin’s nervous system causing exhaustion, headaches, seizures and spasticity the exhaustion don’t extinguish Colin’s desire to define his own life. Colin’s body requires 4x the amount of energy it takes a healthy teen to accomplish a single task, yet wrestling has given Colin a purpose and now a newly defined goal- to keep wrestling as long as he’s living.
Colin states his courage and strength best through his journal-“So as I go into this final month of my Freshman High School wrestling career I remind myself where I have been, Where I am, where I am going, and everyone that has helped me get here. I am a wrestler and wrestlers don’t quit!! Fahr Too Strong!!!”
Please join the Leypoldt family in a silent auction to support the FAHR TOO STRONG FOUNDATION and raise awareness for Rare disease. The event will take place on Saturday Feb 28th at 1933 Brewing Company located at 4025 South Mason Street Suite C, Fort Collins, CO 4-8PM. There is a suggested donation fee of $10 for admittance. Visit Fahrtoostrong.org for more information.
Sarah Morrison is the Founder and Child Life Specialist for Giggling Goat Child life Specialties in Northern Colorado
Follow her @facebook.com/GigglingGoat4Kids or Twitter @ GigglingGoatCLS